More ups and downs

1-28 Lees mom, and sisters Joetta and Kayleen came out for a visit, it was great to see them and it does cheer Lee up quite a bit.  we just hung out at the house until it was time for Lees appointment for his paracentesis.  They tagged along to see the new hospital tower.  Lees paracentesis went well and he was the first one done in the new ultrasound suite.  It is a very nice area of the new tower although Lee said the other bed was more comfortable.  They were able to remove 5900 ML from his abdomen so he was feeling tons better after it was done.  I wish I would have gotten pictures but I totally didn't think about it.  Here is an image of the outside of the new tower.
1-29 Lee had the appointment for the balloon dilation of the esophagus, when they first were doing the initial visual exam of the esophagus they found an ulcer. This made it to dangerous to proceed with the balloon dilation, Dr. Boshart ordered a CT of the esophagus so we went from ENDO to the CT area to wait Lee did so awesome he walked into the building and then to the CT  we then sat and waited for Lees feeding tube to be replaced.  This was a couple hour wait.  We did talk to some very interesting people in the waiting area.  Lee was not happy at all with having to get a new feeding tube but he will do what it takes to get a transplant.  We finally made it home at 5:00 PM  after leaving the house at 6:00 Am it was a very long day.
1-30 I received a phone call from the liver team telling me that Lees PICC line was coiled in his internal jugular, it should end in the superior vena cava above the heart.  Lee has an appointment tomorrow to have it repositioned, and an office visit we will learn what the next steps are to get his swallow better.  hat a busy Week I feel like it will never slow down.